For Anne Bingham, it's a singed image: her 2-year-old daughter Victoria
dangling like a stuffed doll from a makeshift contraption of bungee cords, a
disassembled rowing machine and a wooden plank secured by a VCR stand and
sewing machine.
"At first, she just hung there like a sausage," the East Northport
mother recalled, flinging her own arms forward, lifelessly, in demonstration.
Then the toddler looked up.
It was a simple moment five years ago, but one that marked more progress than
Victoria had ever made. The child, who doctors predicted would most likely see
but never know what she was looking at, make noises but never talk, move but
never walk, was, until that point, only able to turn her head from side to
side. Mentally disabled , she stared unmoved at toys teased in front of her
and had yet to smile.
"She was making zero progress," said Anne Bingham, a mother of four
turned inventor after reaching a moment of clarity among a daily reality of
desperation. She remembered her own frustrations spilling out one summer five
years ago into tears after she let go of all the physical therapists and cried
out to God.
"You gave me this baby," Bingham, 41, remembered saying through
sobs. "I've done everything I can medically. I ask your help," she
said. "I, literally in desperation, said, 'God help me help her.'"
The answer, she said, was the "TheraGlide."
"I thought, if I could lift the gravity off her body, she would be able
to move off the ground," she said, explaining the logic behind the
machine that she would ultimately patent and seek a manufacturer to build.
"All those two years, the frustration was building and the ideas were
swirling."
Sketched on a piece of paper are the images of the first four prototypes for
the machine. Next to a picture of a little girl strapped in a harness are the
notes "adjustable height in legs ... breaks down easily ... independent
spring action in arms."
Against the advice of her husband, Craig Bingham Sr., Anne Bingham built the
first model from household items, stabilizing a plank between the VCR stand
and sewing machine and building an overhead track from a rowing machine.
Victoria's progress was slow but steady, said Bingham, a teacher at the
Chinese School in Dix Hills.
"All the family members said, 'Anne this is so mean. Take her out,'"
she said. "Everyday my husband would say that beam is dangerous and then
take the beam outside."
So, she compromised.
For the second model, a friend helped Bingham build a similar contraption from
steel, using a wheelchair tire on top to facilitate movement from sitting to
walking. The point of the mechanism, Bingham said, is to allow a child to
follow the natural stages of development, which Victoria seemed to be doing.
By age 4, Victoria, a generally happy child whose face flashes to life at
"Barney" videos, was standing in the machine and able to move across
the length of the rectangular space it permitted. Or, as her mother put it,
"She was spinning around like Tara Lipinski."
Now, the 7-year-old takes some of her first unaided steps, with tiny lights at
the back of her sandals blinking with each movement. Her steps, however, are
made slightly unsteady by the 20 pounds she recently gained from steroids used
to control her daily seizures.
"It's little by little," said her home aide Sandra Palacio, a
pediatrician in her native Venezuela who said she is awed by Bingham's
dedication. Even as Bingham's husband underwent his second brain surgery to
control seizures and the couple tries to make time for their other children --
Jessica, 13, Julie, 10, and Craig Jr., 5 -- Palacio said, Bingham works
constantly to keep Victoria improving, celebrating the landmarks like when she
recently used the bathroom on her own. "If she didn't do that, this girl
wouldn't walk," Palacio said. "She'd be like a baby in a bed."
Bingham said that for other disabled children -- the thousands lying on mats
and strapped to standing boards -- she was prompted to patent the product and
idea behind it.
Before developing the final product, Bingham sought help from the Long Island
Forum for Technology, LIFT, which provides technical assistance to small
businesses and entrepreneurs on Long Island.
Executive director Patricia Howley said LIFT helps about 60 inventors a year
but that Bingham stood out.
"We spent a lot of time on hers, more than we do on most. It was
obviously something that was going to make a life better," Howley said.
"This was something that was going to help a child to move. That was
extraordinary."
LIFT helped Bingham produce some of the drawings, build a prototype different
from the makeshift one at home, and explore "manufacturability."
"Your imagination can be better than manufacturing capabilities,"
Howley said.
Such, however, was not the case with Bingham's creation, she added
Al Walker, a lawyer in Melville who helped secure the patents, said they went
through unusually fast. Whereas it usually takes years, Bingham had hers
within months.
"She understood the technology, she understood the child, she understood
the medicine," Walker said. "She never gave up."
With the patents and prototype in hand, Bingham sold the product at about cost
to Rifton Equipment, a manufacturer of products for physically disabled
children. The Chester, N.Y.-based company said it hopes to market the product
in 2005 but that it first has to go through development and testing.
"We definitely consider it innovative," sales manager Tony Potts
said. "We feel this is something that we can bring to the marketplace
that is not there."
He said while the company is often approached with ideas, it couldn't ignore
Bingham's after she drove to the company with her plans. "We had to take
her seriously because she came and knocked on the door," he said.
"She was very persuasive."
Bingham said she had little choice.
"I had to do it," she said. "I wanted to be able to say, ...
'Mommy tried her very best.'"